Wednesday, March 26, 2014

22 Days Later: The Toothless Vomitting Zombie Apocalypse

^ (the title sounded good at the time)

Much has happened over the past few weeks - I think.  Trying to access these memories is not an easy task, however.  Important dates and things I have consciously committed to memory - that stuff mostly seems to stick.  It's all the details and filler that has been stirred up and tossed about, as if the cloudiness of my mind had spawned a tornado that tore it's way through the filing cabinet in my head.


I was able to enjoy a block of good days about a week ago when I took a break from the antibiotics.  The cloudiness parted for much of this time, allowing me to have some quality time with the family.


Eventually, the fun had to end.  I had planned to stay off the antibiotics for much longer in order to try a more natural and gentle approach to treatment.  Then I realized that our insurance won't cover that and these natural protocols can be quite expensive, so…….  Back on the antibiotics I went.


This time around, it's Flagyl and Doxycycline, as well as the Nystatin and about a pound of supplements to keep my immune system in check.


The Flagyl has affected me much like the Tindamax did a couple of months ago.  I'm not as foggy on this stuff, but it makes me feel and behave kind of drunky.  I can think …..



……and the Doxy still makes me throw up.  I just went through a 10 minute vomit fest.  That was the punch to the gut for today.  I feel like shit now.  Headache, shaky, and drained.


I see my doctor a couple weeks.  He has the impression that oral antibiotics just might not work for me.  He's mentioned trying injectable Rocephin and even an alternative antigen therapy which I'll talk more about if and when we do it.


I don't have a lot of juice left, but did want to mention that I have seen a chiropractor twice now, and will now be going in weekly.  He is a great guy and has already helped a couple of my more troubling mobility issues.  It is going to take a lot of work, though.  He does suspect there is damage to my right SI Joint, something I asked over ten doctors and specialists to look at, but none ever would.  All they wanted to look at were the discs in my spine (cha ching!).  One other great thing about this chiro - he's totally paleo.  Like, real paleo.  I love walking into an office and seeing all the same books we have at home scattered about.  Instills a bit of faith that this guy is not a corporate shill.


I also went back to see the dentist.  Looks like I'll be losing my teeth before I lose my hair.  You wouldn't know it on seeing me or my teeth in person, but the roots are all ate up by the bugs.  It only took two years.  That's scary.  I'm just glad I now know I have Lyme and that I am treating it.  It was just too late for my teeth.


This brings up a point that I try to make to people often, and it seems it just doesn't sink in:  The Lyme can do PERMANENT DAMAGE to joints, bones, teeth, organs, etc…..   I may be able to eventually kill the bugs, or at least manage them, but over the last 30 years of nobody listening to or believing me, A LOT of damage has been done.  Case in point - I'm having to have my frickin' teeth ripped out at the age of 40.  Maybe that will nail the point home for some people that this is quite serious stuff we're dealing with here.


I will post an update after I see the oral surgeon.  I still don't have an appointment for that, but it should be fairly soon.  Oh - this is pretty cool - the dentist I went to in Eagle River, Alaska, grew up in Roseburg, Oregon (where I grew up).  Small world.


PS - at least I tossed my cookies on garbage pickup day.  Gotta take even the small victories these days ;)

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